New & Updated Special Needs Directory

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By Aprille Donaldson

From Katie: We’re thrilled to present you with this new and updated directory of special needs resources. Many thanks to Aprille Donaldson for compiling this list that we know will be of great use to any parent raising a child with special needs. Aprille is the author of the local blog Beautiful in His Time, and she has blogged for us several times on TMoM.

You may remember her well-received post about special needs called “Stranger on a Park Bench” from earlier this fall. In her own words, Aprille describes her connection to the special needs community: “My son has the words ‘adjustment disorder’ and ‘ADHD’ in his file at his new school for children with ‘behavioral and/or emotional disorders.’ I know it’s not the same as autism or cerebral palsy or Down Syndrome, but it puts me on the outskirts of a world of moms whose children have needs that go beyond ‘typical.’ His problems, invisible, yet so big for our family. His needs drive me deeper into friendship with special needs moms. The more I become aware of special needs the more I want to keep writing about special needs. All of the needs – the visible and the invisible.”

Aprille adds that this directory is by no means meant to be an extensive list, so if you are a special needs parent or blogger, please leave the link to resources not found on this directory in the comment section below!

Local Organizations And Programs

Triad First in Families
“Partnering with people with disabilities and/or their families by supporting their efforts to realize their dreams and achieve their goals.” TFIF hosts eventsfunding and scholarships, and more. Find them online or visit their Facebook Page.

Piedmont Down Syndrome Support Network
“The Piedmont Down Syndrome Support Network is a nonprofit organization which provides support and information to parents of children and adults with Down syndrome in the Piedmont area. Our aim is to support each other and enrich the lives of our children and adults so they can reach their full potential.” Visit their Facebook page or check out their private member discussion group.

Down Syndrome Network of Greater Greensboro
The Down Syndrome Network of Greater Greensboro is committed to enriching the lives of individuals with Down syndrome by connecting with new families, providing social and educational opportunities for members, and promoting awareness and inclusion of individuals with Down syndrome in our community. Contact Ellen Bishop at dsngginfo@gmail.com for additional information.

Sensory Friendly Mondays at Kaleideum Downtown (formerly The Children’s Museum of Winston-Salem)
Children with austim spectrum disorder (ASD) and sensory processing differences are invited to have a fun, enjoyable and interactive learning experience in a comfortable and accepting environment.  Sensory Friendly Mondays are offered one day per month, September – May, on Members Only Mondays (9:00 am-12:00 pm) when attendance is light.  You do not need to be a member in order to attend, but membership or admission is required.  Download a social narrative and visual schedule to help prepare for your visit by clicking HERE.

Happy Mama Conference and Retreat
Are you a stressed-out, overwhelmed, overworked, tired and under-nurtured mother of a child with ADHD, ADD, OCD, SPD, PBD, FASD, Autism, PDD, or any number of other brain-based differences that lead other people to judge your parenting, make you second-guess yourself, challenge your marriage, and keep you up at night worrying incessantly about your child? If so, then look no further for a soft place to land. The Happy Mama Retreat has been created especially for you!  The Happy Mama Retreat is a weekend away for moms of children with special needs, created by moms of children with special needs. Not just a spa weekend, not just an educational conference, not just a moms-only weekend away – it’s all three rolled into one. We want to help you gain community with other mothers who share your questions, concerns, worries, and fears. We want to provide education to help you advocate for your child and yourself, and to give you the tools to re-discover your own happiness. We want to nurture you with a beautiful setting and fun, relaxing activities. We want you to be happy, mama!  (Scholarships are available through the Tanji D. Dewberry Happy Mama Scholarship.) You can find the Happy Mama Retreat on Facebook.

Lindley Habilitation
Lindley Habilitation Services specializes in helping persons with Intellectual and Developmental Disabilities reach their fullest potential.  They provide Inovations I/DD Medicaid in home services, Day Program Services, AFL Services, as well as private pay care for the Innovations I/DD community.  Lindley Habilitation has offices in Greensboro, Clemmons and Burlington. You can also find them on Facebook.

OT4KIDS
OT4KIDS offers pediatric Occupational, Physical, Speech, Craniosacral, and Massage Therapy in Lexington, NC and the surrounding areas. Find them on Facebook.

N.C. Infant-Toddler Program
The North Carolina Early Intervention Branch (NCEI) is a part of the N.C. Division of Public Health. It is the lead agency for the N.C. Infant-Toddler Program (ITP). The Infant-Toddler Program provides supports and services for families and their children, birth to three who have special needs.  Sixteen Children’s Developmental Services Agencies (CDSAs) across North Carolina work with local service providers to help families help their children succeed.

Amos Cottage
Amos Cottage Incorporated is dedicated to supporting programs offered by health-care providers for early diagnosis and treatment strategies for families and their children who have developmental disabilities and behavioral disorders, to help them live to their fullest potential.

A Bridge to Learning
A Bridge to Learning is committed to providing quality, caring assistance to families of children with autism and related disorders.  Their goal is to help individuals achieve their desired personal outcomes and develop to their fullest potential through individualized, professional support.

ABC of NC Child Development Center
ABC of NC Child Development Center is a non-public, not-for-profit center providing quality individualized diagnostic, therapeutic, and educational services using evidence-based practices in the field of autism treatment for children with autism spectrum disorders (ASDs) and their families.  ABC of NC also has free parent and professional workshops open to the general public. Find ABC of NC on Facebook.

The Arc of Greensboro
The Arc of Greensboro is an organization of and for people with Intellectual and Developmental Disabilities (I/DD) and their families, promoting and protecting their human rights and actively supporting their full inclusion and participation in the community throughout their lifetimes. Find The Arc of Greensboro on Facebook.

Autism Society of North Carolina
The Autism Society of North Carolina is a statewide non-profit organization dedicated to providing support and promoting opportunities that enhance the lives of individuals on the autism spectrum and their families. Find Autism Society of North Carolina on Facebook.

Footprints Case Management
The Community Alternatives Program for Children (CAP/C) provides cost-effective home care for medically fragile children (through age 20) who would otherwise require long-term hospital care or nursing facility care. The program contributes to the quality of life for the children and their families/caregivers, while providing care that is cost-effective in comparison to the Medicaid cost for institutional care.  Owned and operated by a parent of three special needs kids they understand the unique challenges you face as the parents of a special needs child.  You can find them on Facebook.

Cherith Cottage
Cherith Cottage offers a private cottage to caregivers for overnight respite. Caregivers include those taking care of children/adults with a disability; children with a life-threatening, chronic or terminal illness; aging parents unable to care for themselves.  Call Paula or John at 704-238-0585 for reservations.

iCan House
iCan House is a 501 c3 nonprofit organization registered in Winston-Salem, North Carolina. The iCan House educates, supports, and enhances the lives of those with social challenges and their families. They do so by teaching social and life skills using our own unique, interactive and engaging curriculum. They currently offer more than 8 programs and using this positive approach, they help members learn life, social, and independence skills. By doing so, their members also develop a sense of belonging and purpose.  Find them on Facebook here.

CHAAMP
Located at the Tom A. Finch YMCA in Thomasville, The CHAAMP program (Communities Helping All Achieve Maximum Potential) holds an event roughly once a month for school age kids with special needs. They have movies, bowling, Easter egg hunts, Halloween parties and more. They try to do something different each month. Some events involve the family and for some, parents can drop their kids off for the short time of the event. Contact Alex Laughlin – Alex.Laughlin@MyYNow.org.

Bayada Pediatrics
Whether your child is in the hospital, already home, or just needs some help at school, look to BAYADA Pediatrics to provide home health care services that are delivered with compassion, excellence, and reliability.  You can find them on Facebook here.

Family Support Network of Central Carolina 
A non profit that serves families that have children with special needs (open to any diagnosis, at any age!) in Guilford and surrounding counties. They offer fun, free community events, support groups, parent mentors, and educational programs year round. They can be found directly at support@fsncc.org or via their website www.fsncc.org, on Facebook at www.facebook.com/fsncc, on Twitter @fsn_cc and Instagram @fsn_cc.

Angel Heart Speech & Language Therapy, Inc.
Angel Heart Speech & Language Therapy Inc. serves children in their community by providing the tools they need to improve their ability to communicate with family, friends, and everyone in their community that they might meet. They specialize in pediatric services enabling children and their families to overcome their obstacles and improve their quality of life.  Email: marylou.rice@angelheartslp.com.

Books

Parenting with Love and Logic by Foster Cline and Jim Fay

A Special Gift: A Devotional for Mothers of Children with Unique Challenges by Carrie Gruman-Trinkner

More Than a Mom: Living a Full And Balanced Life When Your Child Has Special Needs by Heather Fawcett, Amy Baskin

Held: Learning to Live in God’s Grip {A Bible Study for Special-Needs Parents} by Lee and Sandra Peoples

Empowering Your Child Who Has Special Needs by Debbie Salter Goodwin

Different Dream Parenting: A Practical Guide to Raising a Child with Special Needs by Jolene Philo

Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues by Lindsey Biel, Nancy Peske

Top Ten Books about Autism by Kori from Just Another Mom

4 Life Skills Book Recommendations for Parents of Children with Special Needs from Gabriella Volpe

Websites And Online Communities

Exceptional Child Publication (An Annual Publication of Piedmont Parent)

Wright’s Law

The Complete Caregiver
“Our mission is to assist parent-caregivers of special needs and medically fragile kids by providing information, activities, resources and support to help them take care of themselves while being great caregivers to their children.”

Not Alone Parents {Special Needs Parenting}

Special Needs Parenting Bloggers

Special Needs Parents Support

Parents of Medically Complex Kiddos- North Carolina

Personal Blogs

Brielle and Me: Cytomegalovirus (CMV) and cerebral palsy

Diary of a Mom: autism

Finding Cooper’s Voice: apraxia, autism

Gillian Marchenko: Down Syndrome, Moyamoya Disease, special needs adoption, depression

Jennifer Janes: PIDD, autism

Speaking in Grace: autism

Singing Through the Rain: autism, sensory processing disorder, apraxia, feeding tubes

WalkersvilleMom: Down Syndrome

Wonderfully Made: autism

And Finally, Some More Lists:

10 Blogs for special needs parents

Top 100 Special Needs Resources on the Web

31 Days of Supporting the Special Needs Family

Don’t forget that TMoM also has an entire category on its site dedicated to Special Needs. Click HERE to go directly to that category for additional articles and resources.

*This list was compiled through research and/or reader referrals, but please note that Triad Moms on Main does not necessarily endorse the persons or businesses represented in our directory.


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