Preventing Preeclampsia

Thursday, November 04, 2010

By Guest Blogger Sarah Scott, blog author of Great Scotts: Snapshots of Our Blessed Life  

Hypertension. Swelling or edema. Proteinuria. Sudden weight gain. Headache. Nausea or vomiting. Changes in vision. Racing pulse. Mental confusion, heightened anxiety, trouble catching your breath. Stomach or right shoulder pain. Lower back pain. Hyperreflexia.

These are all symptoms of preeclampsia, a common pregnancy complication that typically occurs during the second and/or third trimesters. If left untreated it can progress to eclampsia, an acute and life-threatening complication characterized by the appearance of tonic-clonic seizures, usually in a pregnant mother who had developed preeclampsia. Why is this information relevant to you? It may not be at the moment, but it is important information to carry with you. It may save your life or others.



I certainly didn’t think that I would ever have to worry about having a serious pregnancy complication like preeclampsia or that I would have to be induced 5 ½ weeks early in an effort to save my child’s life and my own. I definitely never saw myself giving birth to a premature infant and having to worry if he and I would survive his birth. I never saw myself spending a week in the NICU worrying, surrounded by strange machines and busy nurses. I never saw it coming. After all, everyone in my family has given birth to large and healthy babies. Everyone in my family was able to hold their babies after giving birth and begin nursing when they wanted to. Everyone in my family was able to spend those first precious hours mothering their children in their hospital rooms, surrounded by loved ones. I always assumed I would too.

The truth is that they tell you briefly about preeclampsia in your pregnancy classes and in that ten minute debriefing in your doctor’s office. They even have a short section about it in every pregnancy book. The information is there, I just never thought I would need it. My pregnancy was progressing very well until Week 34. I had been eating well, walking daily, sleeping well, gaining weight at a normal rate, and was glowing with energy and excitement about my son’s birth. However, at the beginning of my 34th week, I woke up with a splitting headache in the middle of the night. This soon progressed to extreme nausea and an unbearable pain in my abdomen (which I later found out was the beginning of liver failure). Within 24 hours, I gained a total of 13 pounds, couldn’t use the bathroom, felt extreme lower back pain, and couldn’t keep anything down (even the medicine my doctor prescribed to keep food down!) I called my doctor and was told by a nurse that I probably just had a stomach bug, to put my feet up, and to rest. I insisted that something was seriously wrong and that I wanted to come in. The nurse told me that if I were to come in they would just tell me to rest and send me home. If only in that moment I had the information I am giving you today. If only I had been informed, had known the symptoms, and had trusted my intuition. I may have been able to prevent my son’s premature birth. I may have made it to the hospital earlier, before my condition worsened.

Later that night I was rushed to the emergency room. After bloodwork, I was diagnosed with severe preeclampsia and HELLP syndrome, which is a very critical pregnancy complication and is life threatening to baby and mother. After speaking with my doctors, NICU specialists, and neonatal specialists, we made the decision to induce labor for my health and the baby's health. I gave birth to our son, David at 12:22 AM on Sunday, July 18th, 2010 which made him approximately 5 1/2 weeks premature (our original due date was August 24). He was 4 lbs & 8 oz. So small, but such a fighter.

We were so lucky. Why us? This is something I think about every day as I hold our healthy son in my arms. For many women with preeclampsia, the journey of pregnancy ends with tragedy. This is what drives me to raise awareness. If more women are aware of this complication and its symptoms, perhaps we will be able to make a difference. More research is needed. Medical professionals are still unsure what causes this complication. Weight, diet, age, and lifestyle are not known causes. We need to know, we need to prevent, and we need to save lives. Globally, preeclampsia and other hypertensive disorders of pregnancy are a leading cause of maternal and infant illness and death. By conservative estimates, these disorders are responsible for 76,000 maternal and 500,000 infant deaths each year. This is unacceptable. We need fully funded research, we need answers, and we need hope.
Comments
April commented on 04-Nov-2010 07:18 AM
Thank you for sharing your story and raising awareness. I have heard of this but did not truly know the symptoms or how serious it is. I am so glad your story had a happy ending!
Missy commented on 04-Nov-2010 07:50 AM
I also was diagnosed with pre-eclampsia and HELLP syndrome at 34 weeks, and delivered my son the next day at just under 4 pounds. It is so sudden, so scary, and so serious! We too were lucky and now have a healthy 5 year old boy. Thanks for writing this blog - women should definitely know the symptoms and should never miss regular appointments with their OB!
Missy commented on 04-Nov-2010 08:06 AM
I was diagnosed with preeclampsia and HELLP syndrome at 33 weeks and delivered our son at 34 weeks (10-1-10) via emergency c-section. Being the mother of two already, I was completely taken off guard as I had two healthy pregnancies prior to this one. We spent almost three weeks in NICU. He's home Thanks for sharing your story--Many don't realize the severity of this to mother AND child and need to be made more aware. Congrats on your new baby :)
Sarah Scott commented on 04-Nov-2010 08:30 AM
Hi Ladies! THANKS so much for your supportive comments! Preeclampsia IS sudden and so many women do not know the symptoms or how serious it can be. I needed to write this message to spread awareness. It's my hope that the more people know the more they will want to find a cure!

I highly reccommend the website: www.preeclampsia.org. It has definitely helped me to make sense of my whole experience with preeclampsia and to arm myself with knowledge as I move forward.
Anonymous commented on 04-Nov-2010 09:46 AM
This is the second article I have seen in here about pregnancy where mothers thought something was wrong and were told by a nurse not to worry about it—overreact. I had the same thing happen to me when I went to the hospital to have my son—the not being taken seriously part. The nurses thought I was just a hysterical new mother who was overreacting to the pain of early labor, since I had only been in labor for about 45 minutes. When they checked, I was fully dilated and in the process of trying to give birth to a baby who was breach. Emergency C-section coming right up. I had another nurse tell me I was overreacting when I started bleeding during my third pregnancy, even though six months earlier I had a miscarriage.

My mother and grandmother were both nurses. I have tremendous respect for the profession. But please, when it comes to pregnancy, try to remember that you have two patients, not one, and one of them is very fragile. Isn't it better to be safe than sorry?
Kelly S commented on 04-Nov-2010 11:14 AM
Incredible story. Thank you so much for sharing. I knew nothing about this, but am so fortunate to now know the signs.
Jessica commented on 04-Nov-2010 01:10 PM
Great article, something every mom soon to be should know. I work in an NICU and I know how critical it is for early detection on pre-e. It's also important to know that pre-eclampsia can also develop and/or worsen post partum, although not very common.
Sarah, I am so glad everything turned out ok for you and your son.
Debbie commented on 04-Nov-2010 08:28 PM
Thank you for sharing your story. There are so many lessons to be taught from yor story and the one I want to make a point of is to trust your intuition. In 2005 I gave birth to my 1st son, I was 39 weeks, had labored for 4 days, pushed for 2 hours, had a vaccum tried, got Vaginal stitches and then he had to be delivered by c-section. However, this was not even the bad part of the story. 3 days after delivery, I was told I could go home. I opted to stay one more night since it was covered by insurance and I am so thankful I did. In the days after delivery I kept mentioning to the doctors, nurses and family members I couldn't breathe. All of them assured me that it was just my sinuses (it was May and I do tend to have Sinus issues each year) and I was given saline nose drops. It wasn't working. on that 3rd night after delivery we put the baby in the nursery so we could sleep but I couldn't. While my husband was snoring away on the couch bed I was having more and more trouble. I didn't want ot call the nurse but when my night nurse came in and saw me up at 1 am in th emorning she asked why. I told her I couldn't breathe and she was the first person to take me seriously. She took my oxygen level and it was 82% and falling fast, she sprung into action. Iwas rushed from my hospital room to the ED and had tons of test done. 1st they thought heart attack, then a hole in my heart, then they called in a specialist that wasn't sure. No one could figure it out. Finally the specialist thought I looked very swollen, I was - I was in Congestive HEart Failure. They started treating me and in a couple of days I was better. The lesson I lerned here is that YOU HAVE TO SPEAK UP FOR YOURSELF! Ask questions and demand answers. Do not let someone blow you off. You know your body better than anyone and you know when something is not right. Be heard!
Kristie commented on 04-Nov-2010 10:02 PM
My story is similar, but different in that I DID know about preeclampsia going into my triplet pregnancy. I read book after book about preparing for what may happen during a multiple pregnancy but even to this day I don't think I realized how much danger I was in until AFTER I delivered. Thankfully, while on bed rest (for 10 weeks) my doctor prescribed a home healthcare nurse who came to see me once a week in addition to my weekly doctor's visit. I was most worried about pre-term labor which is common in multiple pregnancies. But I felt pretty good (but huge) until about week 30-31. My nurse had sent me to the hospital at week 26 and I stayed overnight and was sent home after they gave me a steriod shot which was supposed to speed up the development of my babies' lungs in case they came too soon. My nurse always checked my heartbeat, blood pressure, monitored contractions, checked for edema, etc. In the middle of week 30 she came to our house, took one look at me and she told me that I was going to the hospital to stay until I had the babies. I had gained 18 lbs. in two weeks (70 lbs total on my 5' 2" frame!) and it was definitely from preeclampsia. I had all kinds of medicines given to me and I too, had a very hard time breathing. Even though I had read about it numerous times, until I delivered, got through recovery and missed the first whole day of my babies' lives due to the sedation medications...I didn't know that if they hadn't decided to deliver them at 31 weeks I could have died. I am so thankful for my home nurse, my doctor (who happened to deliver HER baby the day before I did, just down the hall!) and the medical staff at Forsyth. I think we are all lucky to live in the Triad with all of the incredible doctors, nurses, personnel and facilites available to us through Forsyth and Wake Forest / Brenners. Please, listen to your body and to yourself and if you don't have a good feeling about it, keep talking to doctors / nurses until you feel comfortable with the direction they are giving you!
Anonymous commented on 04-Nov-2010 11:35 PM
We are indeed very lucky. I have had such wonderful treatment from all nurses and doctors here. When it finally did look like something was going wrong, they were wonderful, patient, and compassionate, especially when things didn't turn out well. And, different nurses and doctors have been great with my kids—through broken bones and asthma attacks and all kinds of mishaps. But yes, be sure you know what's wrong, what your options are, and keep asking until you are satisfied. Great advice.
Anonymous commented on 23-Nov-2010 08:40 PM
Sadly, research is showing that several maternal deaths directly related to preeclampsia happen AFTER the birth of the baby, many between 4 and 8 days post-partum. KNOW THE SYMPTOMS, KNOW YOURSELF. Be a proactive patient and never be intimidated by any healthcare personnel. Thank you, Sarah, for sharing your story and all of the extremely helpful advice.
Sarah Scott commented on 01-Mar-2011 09:35 PM
Update on my journey:

I am completing Raleigh NC's Promise Walk for Preeclampsia this May to fight back against the pregnancy complication that threatened to take away so much!

Please support me as I work to reach my fundraising goal of $1000! The following link will take you to my fundraising page: http://www.promisewalk.org/pfpw/participantpage.asp?uid=2294&fundid=952

Any donation will help! :-) Thanks and have a great day!

- Sarah Scott
Chantall commented on 11-Apr-2011 08:18 AM
Hi Sarah,

I was diagnosed with the exact same thing and was fortunate enough to have been blessed with a beautifull baby boy ( 3 weeks prem). I see that u have done some extensive research on pre-eclampsia, and was wondering if u know of any preventative medication that can be taken? I am 30 and would love to have another baby, but i am truely SCARED!!! Those final weeks after being diagnosed were horrific, not to mention the weight gain, and continuously worrying about my unborn baby.
If you have any suggestions or feedback i would really appreciate it. Thanx for your insightfull article, if only there was one i could have read before the fact.
Adrienne Mills commented on 20-Dec-2011 09:50 PM
I propose not to wait until you earn enough amount of money to buy all you need! You should just get the
home loans or commercial loan and feel yourself comfortable
Abbi commented on 21-Jan-2013 12:04 PM
I was diagnosed with preeclampsia at my 37 week check up. I wasn't having any symptoms, that I knew of anyways, until I went in and they took my bp like usual, & I had a TON of water weight, my lower legs, feet and hands were swollen. Luckily I didn't reschedule my appt that day. The doctor didn't waste no time at my check up and had me pushed over to labor and delivery to induce me. I had my son at 12:08am June 18th 2010 at 4 pounds 10 ounces, 17 1/2 inches long. He spent a week in the nicu, & today he's 2 1/2,, so active, so smart, started walking at 7 months, caught on to potty training fast! But I was told if I would've rescheduled I probably wouldn't have been happy.
I am currently pregnant with my second baby (girl this time) 33 weeks as of Wednesday, and I've been having ultrasounds every 2 weeks lately to make sure the baby is growing.
Just came online to google headaches as I woke up with a bad headache right when I opened my eyes and it still hurts! Just more nervous and Idk how likely it is to happen again, I remember my first doctor saying just because I had it this time, doesn't make it more likely to happen again. But this doctor tells me otherwise. Which, I'd rather be safe then sorry! Hoping to have a normal delivery, get those moments with baby right away!
I have an ultrasound today & a doctor appt tomorrow!

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